Actually, I have been his father and dad for over ten years. But this past week, our family received a diagnosis that our son has autism. So now we are a family with an autistic child who happens to have Down Syndrome. Or we have a child who just happens to have both Down Syndrome … Continue reading I Just Became the Father of a Child With Autism
Down Syndrome
“I would not change you for the world, but I will change the world for you.”
Those words were said by Amy Wright, a mother of two children who were born with Down Syndrome and the founder of Bitty and Beau's Coffee Shop in Wilmington, NC. On Sunday she was named CNN's Hero of the Year (http://www.cnn.com/2017/12/17/world/amy-wright-2017-cnn-hero-of-the-year/index.html). If you are the parent of a child with Down Syndrome, what Wright spoke … Continue reading “I would not change you for the world, but I will change the world for you.”
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Malcolm’s Minions – A Chance to be Ultra-Cool For a Day
This Sept. 30th, the Piedmont Down Syndrome Support Network (PDSSN) will be hosting its annual Buddy Walk. For those who are not familiar with the Buddy Walk, here is the blurb from the PDSSN.org website: The Buddy Walk® was created by the National Down Syndrome Society (NDSS) in 1995 to celebrate Down Syndrome Awareness Month … Continue reading Malcolm’s Minions – A Chance to be Ultra-Cool For a Day
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Malcolm’s Wish For World Down Syndrome Day (3/21)
Every year on March 21, the Down Syndrome International sponsors for the world community a WORLD DOWN SYNDROME DAY. You can read more about it here: https://worlddownsyndromeday.org/. The date is a direct reference to genetic condition known as Trisomy 21 (three #21 chromosomes) which is commonly known as Down Syndrome. But Malcolm does not think much … Continue reading Malcolm’s Wish For World Down Syndrome Day (3/21)
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There’s This Post I Read Entitled “That retarded kid that was kidnapped, probably didn’t even understand what was going on…”
And it struck me in many ways. I read it Sunday afternoon after I took the little man to get his hair cut at his favorite place - the Great Clips on Robinhood. The ladies there know him. He's comfortable there. Lots of mirrors and when you are cute, why not look at something cute … Continue reading There’s This Post I Read Entitled “That retarded kid that was kidnapped, probably didn’t even understand what was going on…”
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I Just Became a Jamison Crowder Fan. And I Don’t Like Duke At All.
But I respect him as a man devoted to family and I see a lot of him in my own daughter who is the best teacher that my son Malcolm, who shares something with Crowder's little brother, has in life. Take a look. http://www.espn.com/video/clip?id=18312813&sf47433476=1
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If You Need Assurance in the Younger Generation, Then I Have Some
For the past six years, West Forsyth High School has hosted the Piedmont Down Syndrome Support Network’s Buddy Walk, an event that raises funds and awareness for people with Trisomy 21 and their families. And in the six years that West has hosted the event over $300,000 has been raised. Money is used to help … Continue reading If You Need Assurance in the Younger Generation, Then I Have Some
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Duck Me? No, Duck You! – Musings About Malcolm, Chapter 4
When you become the parent of a child who happens to have Down Syndrome, your mind can fly to a lot of places, especially the future. My wife and I had a prenatal diagnosis of Malcolm’s extra genetic material. It’s quite startling to have this preconceived expectation of what your child will be like instantly … Continue reading Duck Me? No, Duck You! – Musings About Malcolm, Chapter 4
caffeinated rage 